”Go the extra mile. It’s never crowded.” – Unknown
Today’s post won’t be long as I am doing pretty good and not too much to report. When I went back to the neurologist you will maybe remember I was having some speech issues and also some numbness in left hand and foot and leg. Now the numbness I have dealt with prior to surgery, but the speech has come after DBS. I have had some slurred speech, but this new problem is not that. It is difficulty talking. Not like those who can’t find the word. I might have the right word in my head, but can’t get it out. I say that as some friends try to say I have that problem too. I am sorry it’s not the same. After having some reprogramming about three weeks ago the speech is somewhat better. It is not an all day thing and mostly comes when I am tired and end of day. However, it can be frustrating when talking on the phone is part of your work day. Plus I am sure I have said this more than once that “I LOVE TO TALK.” So not being able to do so easy makes me very sad. You know the other day someone asked me if I was glad I did the surgery. Yes I am as I got a lot of my life back after having it and these set backs are just that. There is so much more programming the device can help and it’s just figuring the right settings for me. All of us with ET are different and on different paths and I tell myself I am only at the half a year mark of having it so it only goes up from here. Shout out to the awesome team at Ohio State that I go to as they don’t rush me through the apts and they answer all my questions stupid or not. And there are no stupid questions. There are a lot of people in the world who know not a thing about this disease and how debilitating it can be and how many other deficits we can have with it. Until next time…..