Tremor is a little better 6/29/2024

”The smallest act of kindness is worth more than the grandest intention.” – Oscar Wilde

So over the past two weeks or so I have been tweaking between the four programs I have on my DBS controller to see which is the best for me. I think I might have found the right program and settings. I can now say I am pretty much at 80 percent better with the tremors. In saying that I still have days when speech is hard. The boyfriend says sometimes I sound drunk, but other days I have trouble finding the right words to say. It’s like it’s hard to speak. It’s frustrating, but I have a sixth month follow up with my Neurologist on Tuesday July 9 th so I am hoping with some reprogramming on his end we can better perfect it. I have been doing a lot better with my anxiety lately so that is why I thought maybe I could turn it down a bit. That is definitely something I will bring up to him. I also had a day the other day where I was having trouble paying attention. I am not sure if that has anything to do with the DBS or tremors, but I will definitely be mentioning it. I also am having trouble with my legs, but like I said before I was diagnosed with neuropathy awhile ago so not sure if any of it could be related to the ET or DBS system. Since my tremor is better on the setting I am on I am going to leave it there until my follow up appointment. Until next time……